Hi fans,

After a week of 0.1 neutrophils they went to 0.2 then 0.5 on Tuesday and on Wednesday. I was hoping they would be 0.5 or more again so I could come out of fully protective isolation but today they were 0.4😞 Hopefully they will go up again tomorrow but you have to have 3 consecutive days until I can come out of fully protective isolation.

This is one of my nurses called Vicky

 

And I’ve been unconnected from my lines because I’m taking all the meds orally I was having down my line. I don’t need my feed through my NG tube as I’m eating and drinking lots. I hope I can have my NG tube out soon.

Wow what an interesting few day’s I’ve had. Today my consultant Ray is having some time off where I am so Dr Lawson is taking over but Ray will still come and visit me. I had some surprise visitors which were Jackie from Telford and Dr Cowley from Telford as well. Dr Cowley came into the room and showed me some new animal pictures. He showed me a picture of him hugging the monster from the John Lewis advert but Jackie spoke through the intercom. Now I don’t know who has the best pictures. So who has the best animal pictures?…

 

 

 

Today it has been busy. And my white cell count has come up a bit but not my neutrophils. I’ve managed to eat a bit more and one of the nurses called Sandra made me laugh. My hair hurts some times as it’s quite spikey. I’ve learnt some new magic tricks.

 

This is the school teacher Katie.

 

 

 

 

 

This famous rapper called Guvna B who does a Christian camp that I wanted to go to but I was too ill to sent me a video message.

 

I had a chat with the ward manager Vikki.

It’s been a busy few days here. The main thing is that my neutrophils (a type of white blood cell which help your immune system) have gone up to 0.1 so the bone marrow is starting to work!!!

 

Yesterday, my consultant Ray shaved off my hair as it was starting to fall out a lot. It made me laugh as it tickled. I’ve got some head scarves to wear as my wig won’t be ready for another 10 days.

 

 

 

 

 

 

 

I’ve felt quite well the last few days and have been eating a few things like carrots, chips, and dried mango.

Today I had my feed off and to eat I had rice crispies,a bit of a rich tea biscuit, some macaroni cheese and a potato wedge, and jam sandwich but I didn’t like most of them as my taste buds have changed. These are my doctors. I have  shown them my magic tricks.

This is my doctor Tom

 

 

 

 

 

This is Ray my consultant

Yesterday I had a bit of a temperature but I was ok. One of the consultants, Dr Velangi, brought his laptop to show me photos of when he went to Borneo. There were vipers, other snakes, crocodiles, little bears, scorpions, tarantulas, hornbill birds, elephants, starfish, and leeches. He has set a challenge for other staff to find better animal photos.

Today I have slept a lot and when I woke up a funny lady called Dr Glow the giggle doctor was here. She made a balloon model of me and made me laugh.

Yesterday was a good day, Grace felt well and happy to see her Dad and sister.

 

Today hasn’t been so great, Grace was sick this afternoon and unfortunately her tube came out and needed re-inserting. She’s been very tired and slept most of the afternoon and evening.

 

Overall though, she’s doing very well for this point in her treatment.

I’m still feeling well, I have been eating rice, cucumber, skittles and an ice lolly today. I’ve been doing some knitting and playing with my new shnooks. Sometimes it’s a bit boring but I have a tv in my room.

I’m on TV today and can’t believe it. Watch from 6 mins onwards.

https://www.bbc.co.uk/iplayer/episode/b09dy45r/midlands-today-lunchtime-news-15112017

Today I am feeling better, I haven’t felt or been sick at all. I have had 2 bags of my sister’s bone marrow, it’s like having a blood transfusion but smaller bags. Here’s a picture of me with one…

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