After a week of 0.1 neutrophils they went to 0.2 then 0.5 on Tuesday and on Wednesday. I was hoping they would be 0.5 or more again so I could come out of fully protective isolation but today they were 0.4😞 Hopefully they will go up again tomorrow but you have to have 3 consecutive days until I can come out of fully protective isolation.
This is one of my nurses called Vicky
And I’ve been unconnected from my lines because I’m taking all the meds orally I was having down my line. I don’t need my feed through my NG tube as I’m eating and drinking lots. I hope I can have my NG tube out soon.
Wow what an interesting few day’s I’ve had. Today my consultant Ray is having some time off where I am so Dr Lawson is taking over but Ray will still come and visit me. I had some surprise visitors which were Jackie from Telford and Dr Cowley from Telford as well. Dr Cowley came into the room and showed me some new animal pictures. He showed me a picture of him hugging the monster from the John Lewis advert but Jackie spoke through the intercom. Now I don’t know who has the best pictures. So who has the best animal pictures?…
Today it has been busy. And my white cell count has come up a bit but not my neutrophils. I’ve managed to eat a bit more and one of the nurses called Sandra made me laugh. My hair hurts some times as it’s quite spikey. I’ve learnt some new magic tricks.
This is the school teacher Katie.
This famous rapper called Guvna B who does a Christian camp that I wanted to go to but I was too ill to sent me a video message.
Today I had my feed off and to eat I had rice crispies,a bit of a rich tea biscuit, some macaroni cheese and a potato wedge, and jam sandwich but I didn’t like most of them as my taste buds have changed. These are my doctors. I have shown them my magic tricks.
Yesterday I had a bit of a temperature but I was ok. One of the consultants, Dr Velangi, brought his laptop to show me photos of when he went to Borneo. There were vipers, other snakes, crocodiles, little bears, scorpions, tarantulas, hornbill birds, elephants, starfish, and leeches. He has set a challenge for other staff to find better animal photos.
Today I have slept a lot and when I woke up a funny lady called Dr Glow the giggle doctor was here. She made a balloon model of me and made me laugh.
It was Grace’s last day of Chemo today. she felt very poorly all day! She was cheered up by the lovely presents from the Barn Church – Thank you very much! Hopefully she feels better tomorrow. Today she also went into Isolation, and Dad is staying with her tonight. She had to say goodbye to her friends on the Ward. Olivia is having her operation tomorrow for the bone marrow.
I Had a lovely day practising and showing magic tricks. I chatted with my new friend who is next to me on the bay called Laraib. My Chemo is now finished for today! later on I felt very sick and poorly but i managed to get some sleep. i still don’t feel well.
Today I went to a singing group in the playroom and we were being filmed to go on children in need on the telly and me and the other people were interviewed.
In the afternoon Isla went home for the weekend and I went to school. We had a pretend war and we got wet and then we made a poppy, and had a two minutes silence. Then I went back to my bed and did some magic tricks.
Then I went to see my isolation room and I liked it.