I have now dropped 3 meds but one of then makes my hair grow thick and stops my body from reacting to my sisters bone marrow.Now my hair is thinning and falling out so I have lost my eyebrows.Soon I will start wearing my wig.It is making me quite upset so when I next go to holpital I will tell them. About 2 months ago the hospital sent for a referral with a dermatologist(person who deals with skin)

12 thoughts on “Hair

  1. Hey Grace, thanks for the updates, it’s good hearing from you! Sorry to hear you’re finding things hard at the moment – I’m glad you are going to have a chat with the doctors about it. Thank you for being brave enough to share this with us. Praying for you and sending you love xx

  2. You are beautiful with or without eyebrows. 😍😍😍 but I can imagine how you might feel sad. Keep talking to mum and dad and tell them how you feel. The experts at the hospital will soon sort it for you. And in the mean time, if you feel you want to, you can have fun with your wig! Love you xxx xx

  3. Hi Grace, gosh what a lot you’re coping with. You’re such a brave and resourceful girl and I love that you know about everything that’s happening and can share it with us. I also love your wig because it’s made of real hair and you look so stylish in it. Good luck with your appointment with the dermatologist and keep being the funny clever and beautiful girl we all know and love xxx

  4. Hey princess, when I see your lovely smile it doesn’t matter about your hair. You are beautiful and we love you xx p.s. my nails need painting x

  5. So sorry to hear about your gorgeous hair and eyebrows. Hope & pray that the doctors will soon sort out a good combination of meds that will only do the good things your body needs & not do the things you don’t like happening. You are so brave & grown up about everything & the wig looks great.
    God Bless you,Love Val xx 😊

  6. Well, at least there is less to brush🤔as I no you are not a big fan💖and if you feel like swishing your hair pop your beautiful wig on😘love you loads😘😘💖xxx

  7. Sorry about your hair. You’re still the same brave girl on the inside, and getting stronger all the time as you go through this adventure.
    We’re glad you’re doing well in your new school.

    Lots of love to you!

  8. Hi Grace
    Thanks for all your news. It is great about you being able to swim again. Really hoping and praying that you get to see a doctor to help you with your hair……Remember that even though you may not have any eyebrows at the moment you are still beautiful! Keep smiling, you are doing just

  9. Hi Grace and greeting to you and your family from Devon.
    Really sorry to hear about your hair – pleased to know that you will share how you feel with your Doctor – the hospital can always help you better if they know what troubles.
    Thanks for keeping us posted – you are a strong, brave girl.
    Will be praying for you.
    With love from Devon,
    Wendy 🙂

  10. I think you are becoming a bit of an expert on how to deal with all the problems you have faced! Perhaps you could write a little leaflet to say what things have helped you the most and give a copy to the ward in case it could help others who have to go through similar things to you. You’re very special!

  11. Oh Grace!

    I’m sad to read that you feel how you do about your eyebrows.
    When I get upset about stuff I ask myself, can I do anything to change this, if I can, I do something, but if I can’t I try not to worry or get upset about it by thinking more about the things I can do something about

    One thing I’ve noticed is that when a change is actually happening, it can be really painful at the time, but I know that in a few days it will effect me less, perhaps time helps us to get used to the new situation.

    So my prayer for you is that by the time you read this you will have got used to your new look and are beginning to feel comfortable with it

    Mean while a couple of jokes:

    Never trust an atom. They make up everything.

    Q. Why do French people like to eat snails?

    A. They can’t stand fast food.

    I love pressing F5. It’s so refreshing.

    Q. Why can’t your nose be twelve inches long?

    A. Because then it would be a foot.

    What did one eye say to the other eye?

    Don’t look now, but something between us smells.

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